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END ALS Still Life

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END ALS

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Still Life

The ALS Ice Bucket Challenge in 2014 swept the world. Though the campaign helped to raise the public’s awareness, much more needed to be done to deepen understanding of the disease.In order to communicate that ALS is a disease that takes away one’s ability to move, Hiro wanted to use a method that had impact. As an ALS patient currently only capable of eye movement, Hiro intentionally made himself the subject of a “still life” as an ironic expression of his condition. It was also a way to emphasize the life of stillness he is forced to endure. In a culture where patients tend to shy away from showing their disabilities in public, Hiro actively put his body on display to illuminate the cruelty of his disease.

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